Meet Munzee Munday: Project A.L.S.
Team Munzee is proud to announce that our players have banded together to make a splash in support of Amyotrophic Lateral Sclerosis (ALS) research. Two weeks after Team Munzee doused themselves in ice cold water and our players virtually froze the map, we’re happy to present Project A.L.S. with a donation of $54,000. For this week’s Meet Munzee Munday we wanted to put the spotlight on Project A.L.S. so our players can see what a difference their donations can make. This great organization was happy to sit down with us to talk about their story, how they’re fighting ALS and what this donation means to their cause.
Name and Title:
Project A.L.S. President Meredith Estess
Director of Research Valerie Estess.
Where are you from?
Project A.L.S. is located out of New York City, but we work with scientists all over the world.
How did Project A.L.S. start?
We were founded in 1998, as a non-profit 501(c)3, when our sister Jenifer Estess, a 35-year-old New York theater and film producer, was diagnosed with ALS. The diagnosis kind of came from nowhere, Jenifer was a committed, single, New York working woman, no one saw this coming. We were told at the time of diagnosis to “max out her credit cards and eat junk food,” Jenifer instead committed her efforts to making a difference for people with ALS—and producing treatments and a cure.
We were a family that had a lot of love and we were desperate for an answer. Each of us came from a different business perspective, Meredith worked for fashion retail merchandising and manufacturing, Valerie was in book publishing and copy writing, and Jenifer worked in theatre and was beginning to work in film. We brought a diversity of talent and skills together for Project A.L.S. and we’re an example that each individual person can make a difference.
What is ALS?
ALS is a neuro-degenerative disease very closely related to Alzheimer’s and Parkinson’s. With ALS a particular brain cell called the motor neuron is targeted. These motor neurons are located in the brain and throughout the spinal chord and regulate every voluntary movement within our bodies, from walking and talking to sleeping and breathing. So as these motor neurons are infected by ALS, so are our abilities to function.
What makes Project A.L.S. stand out from other organizations?
What we have found is that organizations like the Muscular Dystrophy Association and the ALS Association are primarily focused on patient services, which are absolutely crucial, but my sisters and I were thinking on different lines. We wanted to know who was doing the research and identify the most promising scientific research that will lead to the first effective treatments and a cure for ALS.
Historically, ALS research was conducted by researchers working separately on various aspects of the disease. Project A.L.S. changed that approach dramatically by requiring researchers and doctors to work together, share data openly, and meet shared research milestones. Project A.L.S. recruits the world’s best scientists and doctors to work together—rationally and aggressively—toward a better understanding of the ALS disease process and, in parallel, better therapeutic strategies.
What are some of Project A.L.S.’ achievements?
There have been so many significant breakthroughs. For example, when we first started in 1998 there was one gene identified in connection to ALS and now there are 27 genes identified in playing a role. Without genetic clues, we’re just shooting in the dark, so this is tremendous. We have also developed new technology with stem cell research. We can now take a small skin sample from anyone with ALS and turn that skin cell into a motor neuron that features the specific person’s DNA. So this gives scientists the ability to look at a patient’s individual disease, understand much more about ALS and screen drugs to help prevent further harm. It may sound like something out of Star Trek, but this discovery was a very hard-won, rational scientific progression.
Where can we see some of our donation go towards?
Your money can go to a number of projects that are ongoing. Every project needs equipment and personnel and this donation will go to the needs of our ongoing research. We’re currently supporting a drive to silence mutated ALS genes, which is being pioneered by Bob Brown at the University of Massachusetts. This would be one example of a project this donation will help fund. Some of the genes we find in ALS are known as diseases of inflammation, which are also active in cancer and diabetes. Through donations like this and by investigating the process ALS goes through we can also begin to understand other diseases as well.
Team Munzee thanks all of our players for their help in raising money for an organization we think is making a difference. We’re constantly humbled by the individuals who give so much, so we in turn use our opportunities to give back as well. Munzee is nothing without its players. On behalf of Project A.L.S. and Team Munzee we thank you from the bottom of our hearts.
Who are you?
What is on your wish list?
Who are you? 
What do you enjoy most about Munzee? 
What is on your wish list? 
Name and Title:
August 13th 2011, just over a month after Munzee launched I was out playing two other location games. I was headed for a long trail, but stopped at a windmill to find a container. As I approached GZ I noticed a tag zip tied to the structure flapping in the breeze. Odd but unimportant in my current search. I found the container a few feet away, took care of business, and turned to leave. Then I noticed the tag had a QR code on it and said “Scan for points”. Being a gamer, and having just installed a QR code reader on my phone a few weeks earlier I scanned it and was taken to the Munzee website. I found out I needed to create an account to play this game, so I did. It was love at first cap. I spent the next 5 hours, and over 100 miles driving to all the nearby Munzees collecting my 5 points. Over the next few weeks I started to interact with “snicker” via email because I was unable to find some of his daughter’s deployments. He 
basically made fun of me (sarcastically) and said I needed to improve my “geo-senses” if I couldn’t find something hidden by his little daughter. LOL. It kicked my Munzee hunting into high gear when I figured out I was interacting with a co-founder and the president. Eventually capping Munzees in his neighborhood lead to meeting him so I took my shot and told him I would work for Munzee one day. I had a vision for what it could be used for and where it could go! I became addicted to chasing special icons and points. I was a fanatical player and made it all the way to #7 on the global leaderboard before I finally got added to the team. The rest of the story is history. 🙂
unzee, and Aaron agreed. In January 2013, things really started to take off, after finally finding a supplier for vinyl stickers. It was 9 months later when Aaron and I talked through the future path for Munzee and he handed off the reins of Munzee Inc to me. October 4th 2013 was a life changing day for me and a game changer for Munzee. Since that time we’ve grown by leaps and bounds, increasing to 8 full time employees, 3 part time, and a fast growing worldwide community of players! Every day I’m amazed at our growth as a company and a game. I’m proud to lead our team as we venture out into new arenas and press on as THE 21st century scavenger hunt.
What do you enjoy most about Munzee?
Name and Title:
I got out of the USAF after 2.5 years because the military was done relying on people to do programming and switched to using companies. I then moved back to Texas where I married my high school sweetheart, got my college degree at University of Texas at Dallas in Management Information Systems, and my wife and I moved to Philadelphia, PA to start our lives. I worked for a few companies, learned a lot about real programming, and then one day got a Facebook message from Aaron talking about this game he thought about called Munzee which has all lead to this.
How long have you worked for Munzee?
What do you enjoy most about Munzee?
How long have you worked for Munzee? 
Munzee helps so many people stay active. That makes me super proud of Munzee. Even if I didn’t run almost every evening, I get my daily walk and Fitbit steps in by playing Munzee almost every night. It’s the same for many of our players out there.
